Posted by:
azexmo
(
)
Date: October 13, 2012 02:41AM
I tried to post this on your original thread, but it was closed...anyway...
I never intended to be a SAHM. When our toddler was diagnosed with Type 1 Diabetes (T1D) completely out of the blue, I was thrust into the situation because it was impossible to find a childcare solution -- she needed someone who could accurately count every carbohydrate she swallowed, calculate and administer insulin shots 4-6 times a day, test her blood sugar every 2-3 hours, interpret and respond to the numbers on the meter, recognize symptoms of a blood sugar emergency, and know how to appropriately respond to a blood sugar emergency...all in a child who was still learning basic verbal skills, let alone possess the ability to tell someone when she needed help.
T1D doesn't sleep...in a child so young, even the smallest dose of insulin can make a huge impact, and her overnight insulin needs are constantly evolving with growth hormones. This means that she often requires overnight blood glucose tests. Which means I've barely slept for a full 8 hours in the 7+ years since her diagnosis.
I was 20 weeks preggo with #2 when she was diagnosed. It went from crazy to crazier...eventually I had to quit my job, which led to piles of medical bills (even with health insurance, it costs a lot of money to keep my kid alive)...finally, bankruptcy.
I was so resentful for so long. Being home wasn't MY dream. I chose nursing as a profession specifically because I felt like it would offer a good work/life balance -- work three 12's, off for 4 days. Our world seemed to crumble under the financial/exhausted/emotional pressure...
And then, one day, I woke up thankful. Thankful that my husband had found a job with access to a better health insurance policy. Thankful for the insulin that keeps her alive, and the insulin pump that has made our life more flexible. Thankful that I was able to monitor her day in and day out, instead of worrying that someone else would miss something. Thankful that we figured out how minimize our life, and live with less.
Don't get me wrong. I had many, many, many days where I was sure that being home was some sort of punishment. I guess I just want you to know that it won't feel this overwhelming all the time. In the big picture, these years are a very short stroke of the paintbrush. Remind yourself of that every day ... one day, you'll wake up and realize you made it to the other side. Hang in there, Mama!!!!