Posted by:
Lot's Wife
(
)
Date: May 12, 2018 01:35PM
This resonates.
I've seen some of the same things. In my family we went through both sides of the experience.
A parent, whom I'll call a father, went through a horrific illness in early middle age. He spent months in the hospital, with wires protruding from all sorts of places and a breathing tube shoved down his throat. There were times when the combination of drugs and sleeplessness literally caused him to lose his mind. They had to tie him down to stop him from ripping out all the tubing and running out of his room and the hospital, although he wouldn't have gotten that far.
When he emerged from that hospital hell, he wrote a living will stating definitively what sort of medical care he would accept. He explicitly said that he would never, ever let them incubate him again. He went on to be a great grandfather, the glue that held a crumbling TBM family together as just a family.
But then he grew old and suffered strokes. He lost his memory for names; he could not drive. It got worse. The kids and grandkids loved him deeply despite his more frequent repetitions, his sillier and sillier jokes, and always his stories from his childhood so many decades in the past. Those fascinated the young ones, and for some reason he recalled them quite precisely although anything recent was lost.
Was he a burden? In some ways, yes. But on balance he was a great, great, great force for good: he lit up everyone's life and gave the children a sense of belonging that no one else, and nothing else, provided. I remember once when my children said "we want to go see grandpa." I replied that I could not get off work to make the trip. They answered, "we didn't invite you." So off the kids flew by themselves to see the old man whom they loved so deeply.
Then there was the last stroke.
The hospital told us that he would probably survive but that he needed to be incubated: that dreaded breathing tube. The doctors said it would only need to be in place for a few days, so we overruled dad's express wishes and went forward with the procedure. His condition worsened, though, and after those few days the hospital told us that he would need to be incubated indefinitely and that there would never be much of him left.
We knew what he wanted. He had written it in his will; he had told each of us dozens of times. We loved him so much that we violated his instructions. But when you looked at him in the hospital bed, barely alive, you felt guilt for putting him in the position he knew so well, and hated, from decades before. So we belatedly did as he had instructed us.
There is not one day, one hour, when any of us doesn't miss him. Life is bleaker without him. I feel some guilt for having incubated him that last time, depriving him of a bit of his dignity, but I think he'd forgive us if he knew we were doing it because the grandchildren needed him so badly. That is probably the one excuse he would have accepted.