Date: January 07, 2019 09:25PM
My 42-year-old son is in the ER of a local hospital in what sounds like renal failure. He has Alport's Syndrome. They say it's a relatively rare disease, but it gallops rampantly through my father's family.
They can't admit him to the hospital where he went, because there are no beds available. Supposedly (and it's been over 4 hours now) they are trying to transfer him to another area hospital. Once he is settled somewhere, they will probably start him on dialysis.
I have it too, but it is more forgiving to women. It is carried on the X chromosome, and somehow, the X that does not carry the defective gene mitigates the severity of the ailment.
Before he was conceived, I didn't know enough about it to be able to ask intelligent questions. I didn't even know that it had a name. And even if I had been able to ask, there weren't that many answers back then.
Please keep my boy in your loving thoughts. Your support means so much to me.